Angela has first hand experience with on-line health advocacy issues and patient networking through her struggles with Lyme disease over the past four years. She was misdiagnosed for the first three years of her illness but has experienced tremendous recovery in the past year since her diagnosis. She also experienced Bell's palsy, a temporary partial facial paralysis during her early months of Lyme disease. She has also been diagnosed with sleep apnea and orthostatic hypotension and was initial diagnosed with Chronic Fatigue Syndrome prior to her Lyme disease diagnosis.
She was also diagnosed with ADD after her daughter was diagnosed as a second grader. She is now a parent of and advocate two children with ADD. Both children, as with many ADD/ADHD children and adults, are considered gifted but struggle with the challenges these overlapping situations can bring to a public school education. Her family has seen the positive outcomes when educators, physicians, counselors, and parents come together through appropriate processes to accommodate alternative educational needs.
Her daughter underwent multiple tumor resections as a toddler, leading to the removal of her spleen, 1/3 of her stomach, and 1/10 of her pancreas. At the time, myofiboroblastic inflammatory pseudotumors were extremely rare, and needed highly specialized attention through the Seattle Children's Hospital and University of Washington. Protocols for preventive treatments for pediatric asplenia have evolved steadily, requiring continued (although happily more occasionally needed) diligence and advocacy with the care of her now teenage daughter.